About This Blog

As time permits, in-depth musings on myriad subjects will be posted. Abbreviated adages will be announced via Twitter.

Friday, July 28, 2017

Plan(s)

This was a tough week in our house.


For the past several weeks (months, even) Nicholle's symptoms of MS have worsened, leading her from moving independently to walking with a cane to now using a walker (and a wheelchair once) to move around the house and in the outside world---when she feels well enough to leave the house. And that's just the walking.


This past Monday, we met with her neurologist to discuss where we are and where we have to go. It was a great appointment/meeting, where the doctor genuinely listened to Nicholle's concerns and provided meaningful feedback on what treatment options would be available based on a new MRI. Even the mention of an MRI produced options, given the insurance we can afford (and we already pay one-third of our family's income EACH MONTH for the privilege of having insurance with a ridiculously high deductible) does not cover MRIs; we pay wholly out of pocket. 


The MRI is now slated for the beginning of August, and Nicholle was able to begin a high-dose steroid infusion to help get her "over the hump" of the next week or two until her treatment can either continue or begin anew. Such high doses, though, wreak havoc on Nicholle's already fragile condition, leading to insomnia and other issues associated with infused steroids; it's not all fun and games. But, Nicholle is making it through like a champ, and we are both grateful that summer school is over. Additionally, I have a couple of weeks of down time before heading back to campus full time, so we've got that going for us.


Even though there are plans in place of how to proceed, there still is no cure for MS. Donations made to the National MS Society help move us and countless others closer to a cure and a life free of the complications of multiple sclerosis. 

Thanks for reading, and thank you for your support.